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SMA

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5 days ago

The Little Mix star has been campaigning for the introduction of screening for Spinal Muscular Atrophy Type 1, after her 14-month-old twins Ocean and Story were diagnosed with the rare condition.

8 days ago

Jesy Nelson has slammed the government for the delay in approving SMA testing for all UK-born babies during her appearance on This Morning on Friday.

What begins as another celebrity lifestyle documentary shifts completely when the former Little Mix star faces a devastating diagnosis for her newborn twin daughters. Every scene is affecting

The fact…

Jesy Nelson struggled to hold back her tears as she said her daughters' SMA battle is a 'never-ending, life-changing situation' that never gets easier.

9 days ago

Campaigners hail ‘landmark moment’ in early detection and treatment of rare muscle-wasting disease

Every baby born in England will be screened for a rare muscle-wasting disease, starting next year, th…

Jesy Nelson has revealed her joy as she announced the SMA Type 1 screening test will now be rolled out across the whole of the UK as a result of her campaigning.
All newborn babies are set to have a heel prick test for Spinal Muscular Atrophy (SMA) in England.

10 days ago

Jesy Nelson has shared her fears that her twin daughters will one day be mad at her for not spotting the signs of their SMA sooner.

15 days ago

Jesy Nelson has revealed she's 'cried all day' because her twins have to wear a spinal jacket and splints during the heatwave following their SMA diagnosis.

17 days ago

Jesy Nelson celebrated a milestone for one of her twin daughters on Tuesday as she shared a snap of her sitting upright in her wheelchair.

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