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We were told our son was a 'late bloomer' and 'fobbed off by GPs'... we now know he has an incurable disease and life expectancy of 30 ○

found 2026 › Apr › 13 (Mon) @ 20:12 UTC

Storm Filitz knew something wasn't quite right with her now four-year-old son Grayson from his birth in December 2021.